MBNF News
MBNF PICNIC
Posted by Tracy
It is time to celebrate the summer with good friends, food and fun!
Where: Winnipeg
Place: Assiniboine Park (Near the Welcome to Charlswood sign).
Date: Saturday, August 21st
Time: 11:00 AM
There will be a piniata for the kids. if you have any games you think anyone would like to play please feel free to bring them.
See you there! ![]()
Run With Me...4 NF 2010, Race Results
Posted by Tracy
Hello runners, walkers and volunteers!
Thank you for being a part of our fifth annual Run 4 NF on Saturday, June 12th, 2010.
We are so thankful to each of you for attending this year's event!
There were 109 runners who completed the course this year. We had people from Winnipeg, Brandon and other towns across Manitoba!
(See results at link below)
http://www.mraweb.ca/results/%202010results_minnedosa.htm
I want to let all those that ran the 5km know...you actually ran 5.7km this year!!! We are secretely training you now for the 10km next year...LOL!
Don't worry...we plan on shortening it next year.
This year's participants and volunteers rose over $7000 for our support group!!! Each member thanks you from the bottom of our hearts for all those that collected and donated to our cause!
Thanks for taking the steps to help MBNF make the lives of our friends living with NF better! ![]()
MBNF STARTS CAMPAIGN TO MAKE MRI'S MORE ENJOYABLE FOR CHILDREN!
Posted by Tracy
Every year thousands of children undergo MRI (Magnetic Resonance Imaging) scans at the Children’s Hospital. The scans are necessary for many disorders and conditions. For those affected with Neurofibromatosis, who require frequent MRIs to monitor tumour growth, they are an important part of their continued health.
An MRI scan can be a frightening experience, especially for children. Often they are scared because of the loud noises and closed-in feelings.
Hospitals in the United States and a few in Canada are using specialized MRI video and audio systems (MRI CinemaVision) to help children (and adults) have a more enjoyable MRI experience. It is a goal of the Neurofibromatosis Support Group, in partnership with the Children’s Hospital Foundation, to raise the funds needed to purchase this system for the Health Sciences Centre Children’s Hospital in Winnipeg.
By providing MRI video we can offer a less frightening experience and a positive alternative to sedation for all patients.
To help with this campaign you may donate on our website directly to this cause!
Stay tuned for future fundraisers to benefit the Children who require MRI's!
Loaning Library available at MBNF Meetings
Posted by Tracy
Books & Videos available for use from our lending library.
Click on the title of this article for a complete list.
Two members travelled to the NF Symposium in BC
Posted by Tracy
Lyndon Demers and Stephanie Weselak will be presenting information they gained at the NF Canada Symposium in September at our next AGM in Portage.
They attended this meeting on April 9-10, 2010 at the Sheraton Vancouver Airport Hotel in Richmond, BC.
More news soon.

